Congratulations to the University of Nottingham, Dying Matters and the National End of Life Care Programme for producing the excellent Planning for your future care publication.

It is written in simple, positive prose and covers all aspects of Advance Care Planning including what is the most difficult aspect, ‘Opening the conversation’.  The tone for the leaflet is set in this telling phrase: ‘Not everyone will choose to engage in such a conversation and that is fine. However, talking and planning ahead means that your wishes are more likely to be known by others.’

I was particularly pleased that the leaflet covered wishes and preferences, and that these included some of the end of life experience defined in the My Last Song ‘death plan.’  Planning for your future care suggests where you want to be, who you want to be with, types of treatment, ‘how you like to do things,’ with examples such as sleeping with the light on or having a shower instead of a bath.

If you, or an ailing loved one,  want to have a ‘good death’ instead of a lonely, frightening end of life, then read Planning for your future care and act on its advice. To make the end of life experience as good as it can be,  fill in your own personal death plan, a template for which is available in the My Last Song Lifebox.

The wishes and preferences are more holistic, covering the music you want to hear; the smells you want surrounding you; the food and drink you wish to taste; the sensations you want your body to feel, such as caressing, massaging, stroking; what you want to see, such as a lovely view or your favourite photographs; how you want to look – clothes, make up, hair style; and ensuring the practical issues are resolved so you have no concerns.

By involving loved ones, doctors and if appropriate ministers of religion or spiritual advisers, having a death plan will go a considerable way to ensuring, if possible, the death is as comfortable and comforting as possible.

There’s a lot happening in the normally quiet death and dying space.  Much of this activity is due to the London Southbank Centre’s courageous decision to put on a week’s events centred on death, in an attempt to reduce society’s reluctance to face mortality.

Part of this will be Sandi Toksvig’s memorial lecture, which she trails with her trademark endearing and engaging wit here.

I’m also looking forward to Paul Gambaccini’s Desert Island Death Discs event, as it will look at the top funeral songs and what they tell us us about our attitudes to departing this world. Will he, I wonder, have gone through the 130 or so lists of farewell songs sent in by visitors to My Last Song?

The Natural Burial Ground’s funeral survey results have also been released, and have some interesting if rather partial findings. The survey has clearly and unsurprisingly been answered mainly by those in or close to the funeral business. What we liked about the results was the large percentages of people who go online to get information about funerals and who have written down or told relatives of their funeral wishes.

Sadly as these wishes are often misplaced or disregarded, such admirable intentions are a waste of time. Which is why people should store their funeral wishes and the vital information required by close loved ones immediately after the death in their own Lifebox.

High on the news agenda today was the story that data from the Office for National Statistics showed that dehydration or malnutrition was linked to 25 deaths every week last year. This is the shocking and depressing counterpoint to the admirable efforts others are making, often out of benevolent self interest, to encourage a change in how the British in particular look at death.

Depressingly it is still true that the vast majority of people don’t think about death and don’t talk about death until it is literally too late. And so the chances of having a good death are still remote as we pointed out earlier, with almost 70 per cent of people dying in hospitals or hospices even though over two thirds say they want to die at home.

My Last Song has supported the case for the terminally ill and the ailing elderly to have their own personal death plans, rather as mums-to-be have birth plans. This way the issues surrounding the end of life can be addressed in as calm a way as possible, with the involvement of loved ones, medical professionals and if appropriate, ministers of religion or other comforters.

After some research we created a holistic death plan template which covers emotional, physical, medical, practical and spiritual issues to make the end of life as comfortable and comforting as possible.

Funeral wishes, death plans and the raising of the public’s consciousness about death and dying are pointing in the right direction, but there’s still a long way to go.

When I started My Last Song four long years ago death, dying and bereavement were subjects rarely covered by media old or new. I had been to two funerals which were dreadfully inappropriate farewells and thought there must be a better way…from that My Last Song developed.

At one stage it had the strapline: Because a good life deserves a good ending, and that’s still our view.

Since then there has been an increasingly rapid change of attitude, highlighted by two or three events which, though small themselves, are significant because of what they signal.

But before that, mention should be made of organisations which have worked hard to change society’s view of how we end our lives. Dying Matters, set up in 2009 by the National Council for Palliative Care, works tirelessly to deliver its aim to change public knowledge, attitudes and behaviours towards death, dying and bereavement.

Dignity in Dying is hugely effective in educating the public in their rights to have a good death, including the option of an assisted death for the terminally ill.

The British Humanist Association has publicised the virtues of a humanist funeral for those who have no religious beliefs and the Institute of Civil Funerals have ensured that civil funerals, often a mix of religious and secular, are conducted to a high standard.

And no summary of changes to funerals would be complete without mentioning The Good Funeral Guide who recommends those funeral directors who are moving with the times, and whose criticisms of the Cooperative Funeralcare and Dignity chains are founded on their sometimes appalling failings in customer care standards.

What of the smaller events which confirm the trend towards taking control of the end of life is gaining momentum?

First, the blog posted by ‘grief specialist’ Kristie West entitled Can A Funeral Be Beautiful? This highlights the film, Remembering Josh Edmonds, a poignant tribute video of a 22 year-old’s life and extraordinarily personal funeral. Making this film was his family’s way of celebrating Josh’s life, something that would have been unheard of a few years ago when the only acceptable way of treating a young death would have been to emphasise the tragic grief of a life taken too early.

At the other end of life’s passage, the Chicago Tribune highlighted what they call ‘Dignity Therapy’ which takes the form of interviewing the dying patient to record their messages to their loved ones, transcribing it and then producing a leather bound ‘legacy document.’

In this country, a similar service is provided by A Giving Tribute, an excellent start up which deserves great success.

The ever growing popularity of green funerals and the ‘natural death’ movement also shows that people are discussing the end of life event they want rather than leaving it to the local funeral director.

More radical still is the Death Café, currently only in London, but planning to expand to other parts of the UK, where, in the words of their website, ‘strangers come together to discuss death and eat delicious food.’ I plan to attend the next Death Café day, and will hopefully add to the favourable reports.

Note too that the photographers specialising in funeral photography, something that would have been frowned up a few years ago.  Farewell Photos and Funeography deserve a mention.

As for My Last Song, the growing use of the Lifebox where people store their funeral wishes, life stories, details to help their loved ones cope following their deaths shows the idea is increasingly appealing as is the number of people visiting the page describing the benefits of having individual death plans to ensure, as much as possible, you can have a comfortable and comforting death.

So at last we are changing our attitude to death, dying and bereavement, influenced for too long by Queen Victoria’s lifelong despair at the death of Prince Albert, into something we should discuss and be in control of.

Our deaths should be just as important as the rest of our lives, and thought of like this, a good life will indeed have a good ending.

Geraldine Beddel, editor of Gransnet, wrote a very thoughtful piece last week which argued that our society has unwittingly colluded in the mistreatment of old people by our widespread casual ageism.

Her thesis is that until we respect our elders, the pernicious cruelty towards old people will continue.

While I agree with her arguments I would like to make two observations.

The first is that these attitudes are far more prevalent in the indigenous, longer established population and much less in the families from Africa and Asia where the wisdom of age is much more valued and respected.

People from these continents are used to seeing their elders work hard, without the protection of a welfare state and pension schemes. In these cultures, a person is brought up and protected by the extended family, and as they get older they then look after those who’ve looked after them. 

There’s self interest and community interest at heart here, and it works well. Where this family/community protection is replaced by the state or other institutions, the appreciation of the human relationship is rapidly diluted. 

When transplanted into this country, such respect for older people remains for one or two generations. I know several African families very well, and respect for elders is a value that is instilled into the children. Any ageist remark or attitude is sometimes literally slapped down.

The second point is that we should value old people not just because they brought us up, but because they have so much to teach us. Again this is where communities from less developed countries can illuminate our failings.

Their idea of education was less through formal schooling and more from the passing down of wisdom, ideas, values and experience from generation to generation. The collective learning of old people was critical to the success or failure of a family, village or tribe.

In our more developed culture, old people may not play such an educational role, but their memories, life stories, achievements, attitudes make up micro social and family histories.

We should understand their worth and do all we can to keep them, because once lost they are lost forever.

This is why the Lifebox is such a useful service.  It’s an online secure area designed to enable personal histories to be uploaded and stored, then to be accessed by chosen younger family members.

It’s probable that many older people who will want a Lifebox will need the help of younger family members to populate it, and in doing so, the bonding between young and old will increase the mutual intergenerational respect.

This in turn will reduce our tendency, pointed out by Geraldine Bedell, to dismiss the value of our older family members.

Penelope Keith, now one of our ‘institutions’, has written in the Daily Telegraph that if younger people mixed more with older people they would be less inclined to break the law.

The star of The Good Life and To The Manor Born is president of a prisons charity which works to divert young people away from a life of crime.

She believes that teenagers and young adults would behave better if they spent more time with grandparents and other older people.

I hope she would like the idea of the Lifebox, the area in My Last Song where people can store and upload their digital memories so they are available for future generations. In effect it’s a digital time capsule.

The reason it should find favour with Ms Keith is that it is ideally suited to encourage younger members of the family to help older members use it. And in doing so, they will learn the lifestories and family history being imparted. This bonding might indeed make youngsters more law abiding. 

For in return, the young relatives will teach their grandparents and other older loved ones to use a computer with more confidence, the result being a unique and valued piece of family and social history which otherwise would be lost forever. The soft skills coaching of their elders will give youngsters a greater sense of purpose and self esteem.

If your family could benefit from all the features of the Lifebox, including drawing the generations closer together and older people being more computer literate, look no further than buying a Lifebox for the person whose memories should be safely stored, or for the youngster to show to his grandparents, ready to sit down and populate it every week or so.

The 1st October is the International Day of Older People, and given My Last Song’s appeal, we are right there in that space.

The international element is the most important, in that it aims to campaign for pensions and greater provision for older people in the developing world. Alas, My Last Song can do nothing to support this goal.

But on a more individual level within the UK, US and other English speaking countries, I hope we can do something to ensure the wisdom, experience and values of each older person will remain after they die. 

This is not to assume that older people are about to die – thank heavens we are living longer and more healthy lives. But the older we get the more we must address our mortality.

And when doing, think about subscribing to a Lifebox into which you can put your memories, your wisdom, your achievements, your photographs…even your secrets. This will be secure so that only you, and after your death your chosen loved one(s), can open the Lifebox and access the information.

There is no such thing as eternal life, thank goodness. However, thanks to digital technology and perpetual storage on Cloud servers, your memories can live forever thanks to the Lifebox. And, as you are a member of the ‘Older’ community, these memories will include your nuggets of wisdom, experience and personal history that would otherwise be lost forever.

The review into Palliative Care, led by the chief executive of Marie Curie Cancer Care, Thomas Hughes-Hallett, has highlighted the fact that very many dying people don’t have the end of life experience they want.

Instead of a ‘good death’ with their loved ones by them, their emotional, physical and spiritual needs being met, they will be taken to a hospital where, quite often, a lonely, frightening and upsetting death awaits them.

My Last Song has produced an innovative and holistic ‘Death Plan’ template to encourage discussion about a person’s last days so that they have a ‘good death’.  The areas covered in the plan include medical treatment, physical comfort, emotional and spiritual needs and ways in which stress and fear can be reduced.

The questions are designed to involve the patient’s doctor, close family and friends and even professional advisers so that the person whose life is ending has no concerns about issues, such as their will or who looks after their pets, as the plan enables these topics to be addressed.

At the very least, death plans such as this enable death and dying to be talked about in an calm, unemotional and rational way. All too often talk of death is put off as it is too upsetting or awkward until it is too late.

At best, it means that the patient and loved ones are in control of the end of life experience, and the death is as comfortable, comforting and reassuring as possible.

The My Last Song death plan is easy to fill out, it can be edited at any time and stored securely in the Lifebox, along with all the other end of life information such as funeral wishes that close family members and the executor will need.

It is, I think, quite a common view expressed during the funeral reception that it’s a shame the person whose life is being remembered wasn’t there to enjoy the company of the gathered friends, family, ex-colleagues, neighbours.

Many people have also told me that they imagine what their funeral will be like because of the people who will attend and hear the tributes, listen to the last songs and swap stories and reminiscences.

These are probably the reasons why living funerals are becoming more popular here and in the US.

When speaking to comedian Arthur Smith, by chance a neighbour of mine, about My Last Song, he told me that his brother Richard, a respected doctor, had written a blog supporting the advantages of living funerals, not the least of which is the advanced planning means far flung loved ones can attend whereas they are unlikely to make the funeral at shorter notice.

A living funeral is the logical destination of the wish to have a farewell ceremony that is a celebration of your life, rather than the traditional grief-fest.

And why not have a ‘party of a lifetime’ to celebrate your life with the people whose lives have touched your life. You can thank them, remind them of their importance to you, swap memories and stories, share your achievements and hopes and, not least, be the centre of attention.

As the founder of My Last Song, I would also emphasise the importance of selecting the music that you’ve most enjoyed, and which has special significance.  The same attention should be paid to the food, the drink and the other details that will make this a party that people will never forget.

You should also organise someone to make a video of the party, or at the least take still photographs.  The video and images can then be put in your Lifebox to be accessed by loved ones in future years, so that your memory, and your memorable last party, can be enjoyed many times over.

Clearly you have to take your family with you, and some of the more traditional members might disapprove.  However, the advantages over and above people’s liking of a good party, include the fact that they won’t have to pay for a reception once you’ve died and also reducing the grief they might otherwise feel when faced with your demise.

After all, how much better to look back on someone’s life and remember the warmth and enjoyment of a final celebration than wish they had been able to share this once it’s too late.

Once the grim reaper has called, the party really is over.

I’m pleased Liz Taylor died the way she did.  Not only was it a fairly quick exit, without too much pain and the indignity of her last days covered by the media, but she also had a great funeral.

Although she wasn’t a member of My Last Song, she may as well have been. And she would have appreciated the Lifebox facility.

She had planned her funeral to the last detail. She wanted to be late for it, so this was an instruction. She wanted it to be interdenominational, so this too was an instruction.

The service included a recital of the Gerard Manley Hopkins’ poem The Leaden Echo and the Golden Echo and a trumpet solo of Amazing Grace, played by Taylor’s grandson Rhys.

She had the final performance she wanted, but only because she (and her family) had planned it beforehand.

Which is the reason she would have enjoyed visiting My Last Song, which helps and encourages people to plan their funerals as well as other end of life decisions.

Liz Taylor would also have taken advantage of the Lifebox and used it to store specially recorded videos – and one can imagine how good these would have been; readings – similarly dramatic; her life story; and even her secrets – and I bet there are still some she’s taken to the grave with her.

So if you know of anyone who would like to follow in her footsteps, go out in style and be remembered for years to come, you know where to point them.

And who knows, Liz Taylor might have visited My Last Song…we have been getting lots of traffic from California recently.

Marie Curie, the cancer care charity, this week published the findings of a survey that showed that almost two-thirds (63 per cent) wanted to die at home and 71 per cent would like to be surrounded by friends, family or loved ones. In stark contrast, just three per cent wanted to spend their final hours in hospital.

Yet according to the Office For National Statistics 69 per cent of people in England and Wales died in hospitals and hospices in 2009. And think tank Demos believes that by 2030, just one in ten people will die at home, the rest dying in hospitals and care homes.

I believes that personalised death plans will enable people to be more likely to have the death they want rather than the frightening and lonely end of life experienced in many hospitals. The sort of treatment old and dying people can expect in NHS hospitals was graphically shown on Dispatches earlier this week, confirmation of the Health Service Ombudsman’s criticism of how the NHS deals with the elderly.

The main cause of this often appalling standard of treatment of the dyings is that they don’t have a voice because death is so rarely discussed. Despite the best endeavours of Dying Matters, death is still a taboo subject and therefore the dying haven’t been consulted on how they wish their final days to be spent.

Yet if ailing elderly people and those with terminal illness were encouraged to fill in a death plan, it would mean the involvement of family members and family doctors who would then know what end of life experience the dying person wanted.

Dr Chris Browne, contributing editor of the health section of My Last Song, agrees: “As a GP I believe that death plans should be encouraged as they can empower the patient and their families to take greater control of the end of life experience.  This won’t happen without people’s wishes being discussed, evaluated, written down and then acted upon by family members and medical professionals.”

The death plan template within the Lifebox section of My Last Song covers much more than medical decisions. The headings enable the dying person to be as comfortable in mind and body as possible when their final moments arrive.

These headings allows people to state where they want to die, the level of medical intervention they want, who they want to visit them when they are dying, who should be there, what they want to hear, (music, poetry, prayers), what they want to smell (incense, scented candles, oils, flowers), how they want to be touched (hands held, caressed, gently massaged), and importantly and often overlooked, being clear of worries (knowing their loved ones and pets are cared for, their estate is in order, their will is up to date).

After all, pregnant mothers-to-be are encouraged to create a birth plan so that they are confident that giving birth will be as positive an experience as possible. The same should be achieved if death plans were more widely used.